The ethics and governance of human genetic databases : European perspectives / edited by Matti Häyry ... [et al.]
Contributor(s): Häyry, Matti.
Series: Cambridge law, medicine, and ethics. Cambridge ; New York : Cambridge University Press, 2013Description: xi, 283 p. ; 24 cm.ISBN: 9781107652576.Subject(s): Human genetics -- Databases -- Moral and ethical aspects | Biological Specimen Banks -- ethics -- Europe | Databases, Genetic -- ethics -- Europe | Genetic Privacy -- Europe | Genetics, Medical -- ethics -- EuropeGenre/Form: Print books.| Current location | Call number | Status | Date due | Barcode | Item holds |
|---|---|---|---|---|---|
| On Shelf | QH438.7 .E833 2007 (Browse shelf) | Available | AU0000000005807 |
Browsing Alfaisal University Shelves , Shelving location: On Shelf Close shelf browser
|
|
|
|
|
|
|
||
| QH438.7 .B38 2019 Altered inheritance : CRISPR and the ethics of human genome editing / | QH438.7 .C55 2018 Clinical ethics at the crossroads of genetic and reproductive technologies / | QH438.7 .D39 2020 Editing humanity : the crispr revolution and the new era of genome editing / | QH438.7 .E833 2007 The ethics and governance of human genetic databases : European perspectives / | QH438.7 .H37 2013 The material gene : gender, race, and heredity after the human genome project / | QH438.7 .P64 2018 Blueprint : how DNA makes us who we are / | QH438.7 .S725 2015 Genes and the bioimaginary : science, spectacle, culture / |
Includes bibliographical references (p. 257-275) and index
Introduction : some lessons of ELSAGEN / Vilhjálmur Árnason -- On human genetic databases / Gardar Árnason -- American principles, European values and the mezzanine rules of ethical genetic databanking / Matti Häyry and Tuija Takala -- The languages of privacy / Salvör Nordal -- A sociological perspective : public perceptions of privacy and their trust in institutions managing and regulating genetic databases / Kjell E. Eriksson ... [et al.] -- Estonia / Külliki Korts -- Iceland / Margrét Lilja Gudmundsdóttir and Salvör Nordal -- Sweden / Kjell E. Eriksson -- United Kingdom / Sue Weldon -- Public discourses on human genetic databases / Piia Tammpuu -- Regulating human genetic databases in Europe / Jane Kaye -- Consent and population genetic databases : a comparative analysis of the law in Iceland, Sweden, Estonia and the UK / Hördur Helgi Helgason -- Third parties' interests in population genetic databases : some comparative notes regarding the law in Estonia, Iceland, Sweden and the UK / Lotta Wendel -- Transforming principles of biolaw into national legislation : comparison of four national laws in three aspects / Ants Nõmper -- Governance of population genetic databases : a comparative analysis of legal regulation in Estonia, Iceland, Sweden and the UK / Susan M.C. Gibbons -- The legal jigsaw governing population genetic databases : concluding remarks on the ELSAGEN legal findings / Jane Kaye -- Introduction : ethical questions / Vilhjálmur Árnason -- Pursuing equality : questions of social justice and population genomics / Sarah Wilson and Ruth Chadwick -- Benefit-sharing and biobanks / Kadri Simm -- Genetic discrimination / Lena Halldenius -- Privacy / Salvör Nordal -- Trust / Margit Sutrop -- Informed consent and human genetic database research / Sigurdur Kristinsson and Vilhjálmur Árnason -- The impact of biobanks on ethical frameworks / Ruth Chadwick and Mark Cutter -- Genetics, rhetoric and policy / Gardar Árnason -- Genetic databases and governance / Rainer Kattel -- Bioethical analysis of the results : how well do laws and regulations address people's concerns? / Matti Häyry and Tuija Takala