Includes bibliographical references and index

Notes on the contributors. 1 Introduction: from empty vessels to active agents / Lars-Christer Hydén and Eleonor Antelius : Epidemiology -- Dementia studies -- Overview of the chapters -- References. 2 Towards a phenomenological conception of the subjectivity of dementia / Lisa Folkmarson Käll : Dualism and monistic materialism -- Embodied and situated subjectivity -- Dementia and lived embodied subjectivity -- Questions of loss -- Conclusion -- Notes -- References. 3 Dementia in the age of migration: cross-cultural perspectives / Eleonor Antelius : Introduction -- Varied responses to dementia -- Cross-cultural perceptions of dementia -- The multidimensionality of dementia -- Normal ways of being ill -- Aging multicultural populations -- Ethnocultural contextualisation of dementia care -- Varied understandings of dementia -- varied understandings - and experiences - of dementia care -- Discussion -- The constant flux of culture -- Learning outcomes and practical implications -- References. 4 Citizenship-in-and-as-practice: a framework for improving life with dementia / Ann-Charlotte Nedlund and Ruth Bartlett : Introduction -- Why citizenship-in-and-as-practice rather than human rights? -- Understanding citizenship and citizenship practice -- Diversity, and also not only the disease -- The emerging discourse of people with dementia from a citizenship perspective -- Enabling citizenship in and as practice for people living with dementia -- References. 5 Pathways within dementia diagnosis / Charlotta Plejert, Danielle Jones and Elizabeth Peel : Introduction -- Conversation analysis -- Conversational profiling and differential diagnosis during memory clinic assessments -- Interpreter-mediated dementia evaluations -- Diagnostic disclosure -- Concluding discussion -- Transcription conventions (adapted from Jefferson, 2004) -- Acknowledgements -- References. 6 Communication and collaboration in dementia / Anna Ekström, Camilla Lindholm, Ali Reza Majlesi and Christina Samuelson : Introduction -- Dementia and communication -- Communication and dementia from a dialogic and an emergentist approach to communication and dementia -- Collaboration in communication in daily activities -- Communication in care homes and day-care centres -- Communication in home environment: facilitating participation through instructions -- Scaffolding in joint activities with people with dementia: elaborating on some compensatory strategies -- Sequencing and the use of subtasks -- Embodied guidance and nonverbal communication -- People with dementia as competent collaborative partners -- Soliciting help and initiating repair -- Seeking confirmation and validation -- Verbalizing and commenting on an ongoing action -- Conclusion -- References. 7 Storytelling in dementia: collaboration and common ground / Lars-Christer Hydén : Storytelling as collaboration -- Common ground -- Fragmentation and redefinition of the common ground -- Collaborative compensatory adaptions -- Being proactive -- joint meaning making and repair -- Summary and discussion -- References. 8 Dementia as chronic illness: maintaining involvement in everyday life / Ingrid Hellström and Annika Taghizadeh Larsson : Introduction -- Dementia: a chronic illness -- Adjusting in everyday life -- Personal assistance and dementia -- Illness-related work -- Everyday work -- Biographical work -- What can we learn? -- References. 9 "Home is somewhere in-between-passage": the stories of relocation to a residential home by persons with dementia / Parvin Pooremamali : Case description -- My new home is somewhere-in-between passage -- Conclusion -- Implications and recommendations -- References. 10 Self-help, mutual support and advocacy: peers getting together / Linda Örulv : Self-organising: driving-forces and potential gains -- Diagnosis and identity -- Preconditions for self-management and organisation -- The "to be or not to be" of professional facilitation -- Obstacles for self-advocacy -- Internal obstacles for self-advocacy within the dementia movement -- Discussion -- Notes -- References. Index

Traditionally, dementia has been defined primarily in terms of loss; loss of cognitive and communicative competencies, loss of identity, loss of personal relationships. People living with dementia have been portrayed as increasingly dependent on others, with their loved ones seen more as caregivers than as spouses, children and relatives. However, in the last two decades this view of the person living with dementia as an 'empty vessel' has been increasingly challenged, and the focus has shifted from one of care to one of helping people to live with dementia. With contributions from an international range of expert authors, Living with Dementia strongly advocates this new perspective through in-depth discussion of what people with dementia and their loved ones can do, and how they can actively make use of remaining resources. Topics covered include: how to involve people with dementia in collaborative activities in the home, and the benefits this has on their cognitive and communicative abilities; ways in which identity can be presented and preserved through storytelling, and the impact on identity of moving from home into residential care; [and] the benefits of a 'citizenship' approach to dementia: of recognising that a person living with dementia is an active agent, with the right to self-determination and the ability to exert power over their own lives--back cover