"Save my kid" : how families of critically ill children cope, hope, and negotiate an unequal healthcare system / Amanda M. Gengler
By: Gengler, Amanda M [author].
Publisher: New York : New York University Press, ©2020Description: 241 p: 24 cm.Content type: text Media type: unmediated Carrier type: volumeISBN: 9781479863938; 1479863939; 9781479864621; 1479864625.Other title: Save my kid.Subject(s): Critically ill children -- Medical care -- United States | Critically ill children -- Family relationships | Parents of terminally ill children -- Psychology | Catastrophic illness -- Social aspects -- United States | Child health services -- United States | Health services accessibility -- United StatesGenre/Form: Print books.Current location | Call number | Status | Date due | Barcode | Item holds |
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On Shelf | RJ47.7 .G46 2020 (Browse shelf) | Available | AU00000000016835 |
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RJ47.3 .R45 2015 Orphan : the quest to save children with rare genetic disorders / | RJ47.5 .H38 2018 Handbook of pediatric psychology / | RJ47.5 .N5413 2012 Speaking honestly with sick and dying children and adolescents : unlocking the silence / | RJ47.7 .G46 2020 "Save my kid" : how families of critically ill children cope, hope, and negotiate an unequal healthcare system / | RJ47.8 .F54 2016 Pediatric ethics : protecting the interests of children / | RJ47.8 .W44 2016 When doctors and parents disagree : ethics, paediatrics and the zone of parental discretion / | RJ48 .A15 2012 The 5-minute pediatric consult / |
Includes bibliographical references and index
Hope is a thing with feathers -- Studying families of critically ill children -- Care-captaining : climbing the rungs of the U.S. healthcare system -- Care-entrusting : staying on the medical sidelines -- Blending and switching care strategies -- When everything is not enough -- The fragility and tenacity of hope -- Emotionally perilous paths : illness management, emotion management, and the production of healthcare inequalities
"'Save My Kid' is a deep exploration of the healthcare system and how it affects the families of critically ill children"--