We the scientists : how a daring team of parents and doctors forged a new path for medicine / Amy Dockser Marcus.
By: Marcus, Amy Dockser [author.].
Publisher: New York : Riverhead Books, ©2023Edition: First edition.Description: xxx, 222 pages ; 22 cm.Content type: text Media type: unmediated Carrier type: volumeISBN: 9780399576133.Subject(s): Niemann-Pick diseases -- Treatment | Rare diseases -- Patients | Genetic disorders in children -- Patients -- Family relationships | Parents of children with disabilitiesGenre/Form: Print books.Summary: "Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"--| Current location | Call number | Status | Date due | Barcode | Item holds |
|---|---|---|---|---|---|
| On Shelf | RJ399.L95 M37 2023 (Browse shelf) | Available | AU00000000020047 |
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| RJ399.C6 H37 2014 Pediatric obesity : prevention, intervention, and treatment strategies for primary care / | RJ399.C6 I572 2006 Perspectives on the prevention of childhood obesity in children and youth / | RJ399.C6 V65 2014 Childhood obesity : ethical and policy issues / | RJ399.L95 M37 2023 We the scientists : how a daring team of parents and doctors forged a new path for medicine / | RJ401 .A47 2015 Red Book 2015 2015 Report of the Committee on Infectious Diseases | RJ401 .B69 2019 Moffet's board review for pediatric infectious diseases / | RJ401 .C545 2007 Clinical handbook of pediatric infectious disease / |
Includes bibliographical references and index.
"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"--