01623cam a22003497i 450000100090000000300070000900500170001600800410003301000170007402000310009102000280012203500200015004000330017004200080020305000220021110000310023324500780026426000090034226400790035130000290043033600210045933700250048033800230050550000200052850504520054865000210100065000340102165000220105565000220107765500240109977601500112319013708US-DLC20170220083839.0160311t20172017enk 001 0 eng  a 2016012145 a9780190459277 (alk. paper) z0190459271 (alk. paper) a(DNLM)101678828 aDNLM/DLCbengcDLCerdadDLC apcc00aR853.H8bD74 20171 aDresser, Rebecca,eauthor.10aSilent partners :bhuman subjects and research ethics /cRebecca Dresser. c2017 1aNew York, NY, United States of America :bOxford University Press,c[2017] axvii, 302 pages ;c22 cm atext2rdacontent aunmediated2rdamedia avolume2rdacarrier aIncludes index.0 aSubject perspectives : the missing element in research ethics -- Personal knowledge and study participation -- The everyday ethics of human research -- The hidden world of subjects : rule-breaking in clinical trials -- Participants as partners in genetic research -- Terminally ill patients and the right to try experimental drugs -- Embedded ethics in developing country research -- Research subjects as literary subjects -- How to hear subjects.12aEthics, Research22aHuman Experimentationxethics22aResearch Subjects22aBioethical Issues 02localaPrint books.08iOnline version:aDresser, Rebecca, author.tSilent partnersdOxford ; New York : Oxford University Press, [2016]z9780190459284w(DLC) 2016012492