TY  - BOOK
AU  - Eiseman,Elisa
AU  - Bloom,Gabrielle
AU  - Brower,Jennifer
AU  - Clancy,Noreen B.
AU  - Olmsted,Stuart
ED  - Science and Technology Policy Institute (Rand Corporation)
ED  - Rand Corporation.
ED  - National Cancer Institute (U.S.)
ED  - National Dialogue on Cancer.
TI  - Case studies of existing human tissue repositories: "best practices" for a biospecimen resource for the genomic and proteomic era 
SN  - 0833035274 (pbk.)
AV  - RD127 .C37 2003
PY  - 2003///
CY  - Santa Monica, CA
PB  - RAND
KW  - Cadaver homografts
KW  - Case studies
KW  - Preservation of organs, tissues, etc
KW  - Tissue banks
KW  - Organizational Case Studies
KW  - United States
KW  - Tissue Banks
KW  - standards
KW  - Tissue Preservation
KW  - methods
N1  - "RAND Science and Technology."; Includes bibliographical references (p. 207-208); Also available on the internet via WWW in PDF format
N2  - The National Biospecimen Network (NBN) Design Team, part of the Tissue Access Working Group convened by the National Dialogue on Cancer, is drafting a blueprint for a high-quality biospecimen network of biological sample banks. To assist in this effort, RAND has conducted case studies of twelve existing human tissue repositories to evaluate their utility for genomics- and proteomics-based cancer research and to identify "best practices" necessary for establishing a national tissue resource and data bank to optimize and accelerate genomics- and proteomics-based research. This monograph presents the findings for each repository evaluated. It addresses biospecimen collection, processing, annotation, storage, and distribution; bioinformatics; consumer and user needs; business plans and operations; privacy, ethical concerns, and consent issues; intellectual property rights and legal issues; and public relations, marketing, and education. All of the repositories evaluated exhibit some of the characteristics that would be useful for an NBN, but some incorporate more of the requirements than others do.  Whether the Design Team decides to build a new repository or use existing institutions to create a national network, information gained from existing repositories provides important insights
UR  - http://www.rand.org/publications/MG/MG120/
ER  -