000			03272cam a2200397 i 4500
999			_c488417 _d488417
001			19409825
003			US-DLC
005			20180523093250.0
008			161216s2017 nyu 001 0 eng
010			_a 2016044044
020			_a9781250064349(hardcover)
020			_z9781250123992 (e-book)
040			_aDLC _beng _cDLC _erda _dDLC
042			_apcc
049			_aAlfaisal Main Library
050	0	0	_aRB155.5 _b.K65 2017
100	1		_aKolata, Gina Bari, _d1948- _eauthor.
245	1	0	_aMercies in disguise : _ba story of hope, a family's genetic destiny, and the science that rescued them / _cGina Kolata.
250			_aFirst edition.
264		1	_aNew York : _bSt. Martin's Press, _c2017.
300			_aviii, 262 pages ; _c22 cm
336			_atext _btxt _2rdacontent
337			_aunmediated _bn _2rdamedia
338			_avolume _bnc _2rdacarrier
500			_aIncludes index.
520			_a"The phone rings. The doctor from California is on the line. "Are you ready Amanda?" The two people Amanda Baxley loves the most had begged her not to be tested-at least, not now. But she had to find out. If your family carried a mutated gene that foretold a brutal illness and you were offered the chance to find out if you'd inherited it, would you do it? Would you walk toward the problem, bravely accepting whatever answer came your way? Or would you avoid the potential bad news as long as possible? In Mercies in Disguise, acclaimed New York Times science reporter and bestselling author Gina Kolata tells the story of the Baxleys, an almost archetypal family in a small town in South Carolina. A proud and determined clan, many of them doctors, they are struck one by one with an inscrutable illness. They finally discover the cause of the disease after a remarkable sequence of events that many saw as providential. Meanwhile, science, progressing for a half a century along a parallel track, had handed the Baxleys a resolution-not a cure, but a blood test that would reveal who had the gene for the disease and who did not. And science would offer another dilemma-fertility specialists had created a way to spare the children through an expensive process. A work of narrative nonfiction in the tradition of the The Immortal Life of Henrietta Lacks, Mercies in Disguise is the story of a family that took matters into its own hands when the medical world abandoned them. It's a story of a family that had to deal with unspeakable tragedy and yet did not allow it to tear them apart. And it is the story of a young woman-Amanda Baxley-who faced the future head on, determined to find a way to disrupt her family's destiny. "--
650		0	_aMedical genetics.
650		0	_aGenetic disorders.
650		0	_aGenetic screening _xMoral and ethical aspects.
650		7	_aMEDICAL / Genetics. _2bisacsh
650		7	_aHEALTH & FITNESS / Diseases / Genetic. _2bisacsh
650		7	_aBIOGRAPHY & AUTOBIOGRAPHY / Medical. _2bisacsh
650		7	_aSCIENCE / Life Sciences / Genetics & Genomics. _2bisacsh
655		0	_2local _94 _aPrint books.
942			_2lcc _cBOOKS