000 03529cam a2200409 i 4500
001 rnd000000000071763
003 RAND
005 20200811100902.0
008 030804s2003 cau b 000 0 eng d
010 _a 2003008549
020 _a0833033646 (pbk.)
027 _aRAND/MR-1546-STPI
035 _a(Sirsi) a437726
037 _c$24.00
_fpaperback
040 _aCstmoR
_cCstmoR
050 0 0 _aQH332
_b.E36 2003
100 1 _aEiseman, Elisa.
_eauthor.
245 1 4 _aThe National Bioethics Advisory Commission :
_bcontributing to public policy /
_cElisa Eiseman.
264 1 _aSanta Monica, CA :
_bRAND,
_c2003.
300 _axxviii, 172 pages ;
_c23 cm
336 _atext
_btxt
_2rdacontent
337 _acomputer
_bc
_2rdamedia
337 _aunmediated
_bn
_2rdamedia
338 _aonline resource
_bcr
_2rdacarrier
338 _avolume
_bnc
_2rdacarrier
500 _a"Science and Technology Policy Institute."
504 _aIncludes bibliographical references (p. 145-172).
505 0 _aIntroduction -- NBAC in the Public Eye -- Response to the Cloning Human Beings Report -- Response to the Research Involving Persons with Mental Disorders That May Affect Decisionmaking Capacity Report -- Response to the Research Involving Human Biological Materials: Ethical Issues and Policy Guidance Report -- Response to the Ethical Issues in Human Stem Cell Research Report -- Response to the Ethical and Policy Issues in International Research: Clinical Trials in Developing Countries Report -- Response to the Ethical and Policy Issues in Research Involving Human Participants Report -- Summary -- Appendix: Data Collection Methods.
520 _aThe National Bioethics Advisory Commission (NBAC) was established by executive order in 1995 to advise the National Science and Technology Council and other government entities on bioethical issues arising from research on human biology and human behavior. During the commission's five-year tenure, it submitted six major reports to the White House that contained 120 recommendations on several complex bioethical issues, including the cloning of human beings, research involving persons with mental disorders that may affect decisionmaking capacity, research with human biological materials, embryonic stem cell research, U.S.-sponsored clinical trials in developing countries, and protection of human research participants. This RAND study was conducted to assess NBAC's contribution to the policymaking process as it relates to these issues. The author provides a detailed account of the responses to each of NBAC's six reports from the president, Congress, government, societies and foundations, other countries, and international organizations. Although no legislation has been passed based on NBAC's recommendations, agencies responsible for a major portion of federally funded research involving human participants-particularly the National Institutes of Health-have adopted several of NBAC's recommendations and issued research guidelines based on those recommendations.
530 _aAlso available on the internet via WWW in PDF format.
610 1 0 _aUnited States.
_bNational Bioethics Advisory Commission.
650 0 _aBioethics
_xGovernment policy
_zUnited States.
650 0 _aMedical ethics
_xGovernment policy
_zUnited States.
710 2 _aScience and Technology Policy Institute (Rand Corporation)
710 2 _aRand Corporation.
710 1 _aUnited States.
_bNational Bioethics Advisory Commission.
856 4 1 _yOnline Access
_uhttp://www.rand.org/publications/MR/MR1546/
999 _c598999
_d598999